Patients and Carers
Health conditions can have an extensive impact on how a person is able to live, and it can be difficult to imagine the extent of the effects without direct experience of them. Patient need is the driving force behind our projects, and as such, it is vital that we understand from patients what their experiences are, and how they would like them improved.
We have developed a strategy to guide our partnership working with patients, carers and the public. You can read our strategy here.
“Patient and carer knowledge and lived experience is hugely important, enriching our understanding of an unmet need and the context in which that unmet need occurs, which ultimately leads to better solutions.”
David Coyle
Renal, cancer and chronic obstructive pulmonary disease (COPD) patient
D4D Patient Partnership Lead
Interview with Professor Ade Adebajo
D4D Steering Committee member and Associate Medical Director at Barnsley NHS Foundation Trust, Professor Ade Adebajo, spoke to our PPIE Lead, Lise Sproson, about his career within research. Talking through his introduction into research as a clinical fellow at Cambridge, the challenges that faced patient involvement in research and the impact of the Covid pandemic, listen to his story and desire to make research more equal, diverse and inclusive.
Interview with Professor Ade Adebajo – NIHR Devices 4 Dignity MIC (devicesfordignity.org.uk)
Lise Sproson Presents at PEOF Webinar
On the 28th of September 2023, our Patient & Public Involvement and Engagement (PPIE) Lead, Lise Sproson, presented at the Patient Engagement Open Forum (PEOF) Session: “Unlocking Global Patient Engagement Excellence.”
D4D, together with project partners from Lab4Living and Sheffield University were winners of the Made with Patients, Special Jury Award for our PPI work on the Head Up Collar.
The interactive online webinar was very well attended, with 77 participants from many different countries (across Europe, UK, Singapore, Spain, Canada and more). It was a fantastic opportunity for all those working in co-design and PPIE to share examples of good practice and talk about innovative approaches to inclusive involvement. We look forward to further collaborations with this network.
We include individuals or groups of patients and carers, or patient-representing organisations such as charities, in the following:
- Discussions and focus groups
- Design workshops
- Iterative design and evaluation
- Project teams
- Contributing to- and being applicants in grant submissions
- Reviewing grant applications
- Membership of our Steering Committee and Project Advisory Panels
- Identification of outcome measures that are important to patients and their carers for inclusion in trials
- Concept and prototype reviews
If you would like to learn more about how D4D works in partnership with patients and carers you be interested in reading some of our project case studies
HeadUp Collar Wins Global Award for Patient Driven Research
The cross-organisation collaboration for the HeadUp neck collar, that employed a patient-centred approach to support patients with Motor Neurone Disease, has been awarded the Made with Patients Awards, hosted by the Patient Focused Medicines Development (PFMD).
Click here to read the full article: Sheffield-Developed HeadUp Collar Wins Global Award for Patient Driven Research – NIHR Devices 4 Dignity MIC (devicesfordignity.org.uk)
If you would like to get in touch to discuss a project, please contact us:
